Resources for Patients, Researchers and Donors

Patients

  • Patient Resource
    Where information equals hope. Directory of organizations that offer financial assistance to people affected by cancer.
  • Dollar For
    Advocating for patients to eliminate medical debt.
  • Cost Plus Drug Company
    Marc Cuban Cost Plus Drug Company cuts out the middlemen to offer hundreds of common (and often life saving) drugs at understandable prices.
  • Co-Pay Relief Program – Patient Advocate Foundation
    The Patient Advocate Foundation’s Co-Pay Relief Program is for insured individuals and provides assistance with co-payment, co-insurance and deductible expenses related to pharmaceutical treatments and/or medications that are prescribed for your diagnosis to eligible individuals.
  • Leukemia Research Foundation
    The Leukemia Research Foundation’s Patient Grant Program offers a one-time grant to eligible leukemia patients living in Illinois or within 100 miles of Chicago.
  • Cancer Care
    Financial assistance for cancer-related costs and co-pays, and professional oncology social workers can help you find additional resources.
  • Cancer Care News (CCN)
    Cancer Care News (CCN) supports people who have been diagnosed with cancer (and their families).  Resources to get help you need quickly, easily, and all for free.
  • Cancer Financial Assistance Coalition
    CFAC is a coalition of organizations helping cancer patients manage their financial challenges.
  • HealthWell Foundation
    Financial assistance to adults and children to cover the cost of prescription drug coinsurance, copayments, deductibles, health insurance premiums and other selected out-of-pocket health care costs.
  • Family Reach
    Family Reach is a national 501(c)(3) nonprofit organization dedicated to removing the financial barriers standing between a cancer patient and their treatment. Loss of income, out-of-pocket expenses, and socioeconomic factors create disparities in the financial burdens families face. Family Reach delivers financial education, financial coaching, resource navigation, and emergency relief funds to patients and caregivers facing a cancer diagnosis so no family has to choose between their health and their home.
  • Patient Empowerment Network (PEN)
    PEN’s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome.
  • Angel Foundation
    The Angel Foundation Emergency Financial Assistance program provides financial support to adults in active treatment for cancer, living in or treated in the seven-county Twin Cities area (seven-county metro area of Minnesota). This program assists with non-medical basic needs such as groceries, gas, utilities and housing payments. The Facing Cancer Together program gives parents and caregivers the tools they need to parent through cancer. Kid-friendly activities provide education, emotional support and social experiences for the entire family.
  • Mesothelioma Veterans Center
    (as it relates to potential development of Leukemia)
    The Mesothelioma Veterans Center provides information about treatment, clinical trials, and VA benefits to veterans suffering from asbestos-related illnesses. They’ve had the honor of helping hundreds of veterans pursue compensation after developing mesothelioma or asbestos-related lung cancer from their asbestos exposure in the military.
  • New York Cancer Foundation
    The New York Cancer Foundation is a 501(c)(3) organization which offers financial assistance grants for non-medical expenses to qualifying patients actively undergoing cancer treatment in the Greater Metro Area (within the counties of New York City, as well as Nassau & Suffolk). The Foundation strives to relieve some of the financial burden patients are facing so they may focus on their treatment and healing.
  • The Samfund
    Provides support for young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment. Through direct financial assistance and free online support and education, The Samfund helps young adults move forward towards their personal, professional, and academic goals.
  • Lymphoma Research Foundation
    The Lymphoma Research Foundation (LRF) offers financial support for people currently undergoing treatment for lymphoma and chronic lymphocytic leukemia (CLL). Through this program, LRF may be able to assist lymphoma patients with expenses related to their treatment.

Informative Links

  • Dana-Farber Cancer Institute – News Release
    Genetic Evolution of Chronic Lymphocytic Leukemia to Richter’s Syndrome
  • Leukemia overview by the Cleveland Clinic
    Leukemia starts when the DNA of a single cell in your bone marrow changes (mutates) and can’t develop and function normally. Treatments for leukemia depend on the type of leukemia you have, your age and overall health, and if the leukemia has spread to other organs or tissues.
  • NYU Langone Health Blood and Marrow Transplant Program
    The team at NYU Langone’s Blood and Marrow Transplant Program, part of Perlmutter Cancer Center, includes highly trained physicians who specialize in blood and marrow transplantation. The team also includes transplantation coordinators, social workers, nutritionists, and other experts from multiple specialties, who work together to provide comprehensive care.
  • Asbestos and Leukemia
    According to data gathered by the National Cancer Institute in 2019, around 61,780 new cases of leukemia are diagnosed in the U.S. each year. The five-year survival rate is approximately 60.7%. This cancer occurs most commonly in people over 66 years old. Repeated exposure to hazardous substances appears to be one risk factor for leukemia. Workers in industrial settings, such as asbestos workers, tire repair workers and soybean farmers, are considered to be at especially high risk for developing leukemia because of occupational exposure to toxic materials.
  • Mesothelioma Veterans Center
    The Mesothelioma Veterans Center provides information about treatment, clinical trials, and VA benefits to veterans suffering from asbestos-related illnesses. They’ve had the honor of helping hundreds of veterans pursue compensation after developing mesothelioma or asbestos-related lung cancer from their asbestos exposure in the military.
  • Milestone reached in new leukemia drug
    Cold Spring Harbor Laboratory scientists, with chemists and cancer biologists from Dana-Farber Cancer Institute (DFCI), have developed a new therapy that extended the survival of mice with acute myeloid leukemia. The scientists are the first to demonstrate the anti-cancer effect of blocking the Salt-Inducible Kinase 3 (SIK3) pathway in leukemia using YKL-05-099, a drug developed within the lab of Nathanael Gray at DFCI. SIK3 is a kinase that controls cell division and survival of leukemia cells. Blocking SIK3 prevents leukemia cells from growing.
  • MSK Program Focuses on Speeding Up Development of New Leukemia Treatments
    On September 3, 2019, Memorial Sloan Kettering launched the Center for Drug Development in Leukemia (CDD-L). This new program will focus on creating more phase I clinical trials for most types of leukemia in adults. Its goal is to rapidly bring novel therapies to people being treated at MSK.
  • Leukemia: Survival Rates and Prognosis
    Leukemia is cancer that affects blood cells. There are several types and subtypes of leukemia, and each of them strikes different types of blood cells. The chance of recovering from this cancer – called your prognosis – depends greatly on the specific type of leukemia.
  • Pediatric Leukemia Treatments Are Not Just for Kids
    Adolescent and young adult (AYA) ​cancer patients ​​are in a unique position – not children anymore but, in many cases, also not fully grown. Oncologists initially believed it was best to treat patients in this age group as adults. Then research indicated that these patients often had better outcomes when treated at pediatric hospitals.
  • Blood Cancer Discovery
    Blood Cancer Discovery, a journal set for release in 2020, will provide a critical outlet for high-impact basic, translational, and clinical research on all disease subtypes of leukemia, lymphoma, myeloma, and associated diseases.
  • Bram Stoker’s Vampire Victim Shows ‘Textbook’ Leukemia Symptoms
    Victims of vampire attacks in 19th-century novels didn’t just turn pale, swoon and waste away; they displayed a wide range of symptoms that hinted at deadly attacks by a fanged, bloodsucking predator. However, the descriptions of those symptoms were likely grounded in observations of real medical conditions.